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    Last Updated: 10/30/2025

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    MediFind found 23 doctor with experience in Neurofibromatosis Type 1 (NF1) near Iowa City, IA. Of these, 6 are Experienced and 2 are Advanced.

    Location
    LocationClose
    23 providers found
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Advanced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Alpa Sidhu is a Medical Genetics specialist and a Pediatrics provider in Iowa City, Iowa. Dr. Sidhu is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Hypothalamic Hamartomas, and Cowden Syndrome.

      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      Advanced in Neurofibromatosis Type 1 (NF1)
      Pediatric Neurology | Neurology
      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Steven Stasheff is a Pediatric Neurologist and a Neurologist in Iowa City, Iowa. Dr. Stasheff is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis, Optic Glioma, Marcus Gunn Phenomenon, and Gomez Lopez Hernandez Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Nuclear Medicine | Pediatric Radiology
      Nuclear Medicine | Pediatric Radiology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Yusuf Menda is a Nuclear Medicine specialist and a Pediatric Radiologist in Iowa City, Iowa. Dr. Menda is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are T-Cell Lymphoma, Marginal Zone Lymphoma (MZL), Muscle Invasive Bladder Cancer, Smoldering Multiple Myeloma, and Liver Embolization.

      Learn about our expert tiers
      Nuclear Medicine
      Nuclear Medicine

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Michael Graham is a Nuclear Medicine provider in Iowa City, Iowa. His top areas of expertise are Smoldering Multiple Myeloma, Classical Hodgkin Lymphoma, ALK-Positive Non-Small Cell Lung Cancer, and Lung Nodules.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics
      Experienced in Neurofibromatosis Type 1 (NF1)
      Medical Genetics | Pediatrics

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Darbro is a Medical Genetics specialist and a Pediatrics provider in Iowa City, Iowa. Dr. Darbro is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Osteomyelitis in Children, Neu Laxova Syndrome, Non-Muscle Invasive Bladder Cancer, and Muscle Invasive Bladder Cancer. Dr. Darbro is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner
      Experienced in Neurofibromatosis Type 1 (NF1)
      Nurse Practitioner

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Samantha Schutt is a Nurse Practitioner in Iowa City, Iowa. Ms. Schutt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Neurofibromatosis Type 1 (NF1) and Neurofibromatosis.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      Experienced in Neurofibromatosis Type 1 (NF1)
      Pediatric Hematology Oncology
      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      David Dickens is a Pediatric Hematologist Oncology provider in Iowa City, Iowa. Dr. Dickens is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Leukemia, Hepatoblastoma, Histiocytosis, and Bone Marrow Aspiration.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Patrick Hitchon is a Neurosurgery provider in Iowa City, Iowa. Dr. Hitchon is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Trigeminal Neuralgia, Fractured Spine, Neuralgia, Microvascular Decompression, and Laminectomy. Dr. Hitchon is currently accepting new patients.

      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery | Oral and Maxillofacial Surgery
      Experienced in Neurofibromatosis Type 1 (NF1)
      Plastic Surgery | Oral and Maxillofacial Surgery

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      John Jensen is a Plastic Surgeon and an Oral and Maxillofacial Surgeon in Iowa City, Iowa. Dr. Jensen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Neurofibromatosis and Neurofibromatosis Type 1 (NF1).

      Experienced in Neurofibromatosis Type 1 (NF1)
      Experienced in Neurofibromatosis Type 1 (NF1)

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Benjamin Miller is an Orthopedics provider in Iowa City, Iowa. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Rhabdomyosarcoma Embryonal, Epithelioid Sarcoma, Mesenchymoma, Undifferentiated Pleomorphic Sarcoma, and Hip Replacement.

      Nurse Practitioner
      Nurse Practitioner

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Gretchen Kass is a Nurse Practitioner in Iowa City, Iowa. Ms. Kass is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Radiology | Neuroradiology | Pediatrics
      Radiology | Neuroradiology | Pediatrics

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Yutaka Sato is a Radiologist and a Neuroradiologist in Iowa City, Iowa. Dr. Sato is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Aplasia Cutis Congenita, Ectodermal Dysplasias, Clouston Syndrome, and Gorham's Disease.

      Physician Assistant
      Physician Assistant

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Deborah Remy is a Physician Assistant in Iowa City, Iowa. Ms. Remy is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her top areas of expertise are Pediatric Low-Grade Glioma (pLGG), RASopathies, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

      Radiology | Pediatric Radiology
      Radiology | Pediatric Radiology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Michael Dalessandro is a Radiologist and a Pediatric Radiologist in Iowa City, Iowa. Dr. Dalessandro is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top area of expertise is Neurofibromatosis Type 1 (NF1).

      Pediatric Hematology Oncology
      Pediatric Hematology Oncology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English

      Andrew Groves is a Pediatric Hematologist Oncology provider in Iowa City, Iowa. Dr. Groves has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Rhabdoid Tumor, and Medulloblastoma.

      Orthopedics | Pediatrics
      Orthopedics | Pediatrics

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Stuart Weinstein is an Orthopedics specialist and a Pediatrics provider in Iowa City, Iowa. His top areas of expertise are Scoliosis, Adolescent Idiopathic Scoliosis, Collins Pope Syndrome, Spinal Fusion, and Osteotomy.

      Radiology
      Radiology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Experience:
      15+ years
      Languages Spoken:
      English

      Lillian Lai is a Radiologist in Iowa City, Iowa. Her top areas of expertise are Hydrocephalus, Meningioma, Normal Pressure Hydrocephalus, and Congenital Cardiovascular Shunt.

      Nurse Practitioner
      Nurse Practitioner
      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      Mary Schlapkohl is a Nurse Practitioner in Iowa City, Iowa. Her top area of expertise is Neurofibromatosis Type 1 (NF1).

      Pediatric Hematology Oncology
      Pediatric Hematology Oncology
      200 Hawkins Dr, 2520 Jcp, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English

      William Terry is a Pediatric Hematologist Oncology provider in Iowa City, Iowa. His top areas of expertise are Ewing Sarcoma, Osteosarcoma, Adult Soft Tissue Sarcoma, and Rhabdomyosarcoma.

      Hematology | Oncology
      Hematology | Oncology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
       (0.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      John Rieth is a Hematologist and an Oncologist in Iowa City, Iowa. His top areas of expertise are Adult Soft Tissue Sarcoma, Alveolar Soft Part Sarcoma, Undifferentiated Pleomorphic Sarcoma, and Mesenchymoma.

      Showing 1-20 of 23

      Last Updated: 10/30/2025

      What is the definition of Neurofibromatosis Type 1 (NF1)?

      Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

      • Upper and lower layers of the skin
      • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

      When should I see a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Iowa City, IA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Iowa City, IA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

      Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Iowa City, IA?

      Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

      Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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