The 20 Best Neurofibromatosis Type 1 (NF1) Doctors Near Me in Iowa City, IA

Find the Top Neurofibromatosis Type 1 (NF1) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 24 doctor with experience in Neurofibromatosis Type 1 (NF1) near Iowa City, IA. Of these, 6 are Experienced and 1 are Advanced.

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24 providers found
    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics
    Experienced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Benjamin Darbro is a Medical Genetics provider practicing medicine in Iowa City, Iowa. Dr. Darbro is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Malignant Peripheral Nerve Sheath Tumor, Osteomyelitis in Children, Neu Laxova Syndrome, and Non-Muscle Invasive Bladder Cancer.

    Neuroradiology
    Neuroradiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Yutaka Sato is a Neuroradiologist practicing medicine in Iowa City, Iowa. Dr. Sato is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Clouston Syndrome, Aplasia Cutis Congenita, Ectodermal Dysplasias, and Gorham's Disease.

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Michael D'alessandro is a Radiologist practicing medicine in Iowa City, Iowa. Dr. D'alessandro is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Learn about our expert tiers
    Neuroradiology
    Neuroradiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Lillian Lai is a Neuroradiologist practicing medicine in Iowa City, Iowa. Dr. Lai is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Hydrocephalus, Meningioma, Normal Pressure Hydrocephalus, and Congenital Cardiovascular Shunt.

    Neuroradiology
    Neuroradiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Joan Maley is a Neuroradiologist practicing medicine in Iowa City, Iowa. Dr. Maley is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Stroke, Normal Pressure Hydrocephalus, Subarachnoid Hemorrhage, and Congenital Cardiovascular Shunt.

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Paul Dicamillo is a Radiologist practicing medicine in Iowa City, Iowa. He has been practicing medicine for over 18 years. Dr. Dicamillo is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Scoliosis, Cervical Myelopathy, Smoldering Multiple Myeloma, and Caffey Disease.

    Pediatric Radiology
    Pediatric Radiology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Simon Kao is a Pediatric Radiologist practicing medicine in Iowa City, Iowa. Dr. Kao is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Epithelioid Sarcoma, Rhabdomyosarcoma, Synovial Sarcoma, Hypochondroplasia, and Glossectomy.

    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics
    Advanced in Neurofibromatosis Type 1 (NF1)
    Medical Genetics | Pediatrics

    State University Of Iowa

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Alpa Sidhu is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Iowa City, Iowa. Dr. Sidhu is rated as an Advanced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Gastroschisis, and Hypothalamic Hamartomas.

    Nuclear Medicine
    Nuclear Medicine

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Yusuf Menda is a Nuclear Medicine provider practicing medicine in Iowa City, Iowa. Dr. Menda is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses T-Cell Lymphoma, Marginal Zone Lymphoma (MZL), Muscle Invasive Bladder Cancer, Smoldering Multiple Myeloma, and Liver Embolization.

    Internal Medicine
    Internal Medicine

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Michael Graham is an Internal Medicine provider practicing medicine in Iowa City, Iowa. Dr. Graham is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Smoldering Multiple Myeloma, Classical Hodgkin Lymphoma, ALK-Positive Non-Small Cell Lung Cancer, and Lung Nodules.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner
    Experienced in Neurofibromatosis Type 1 (NF1)
    Nurse Practitioner

    Office

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Samantha Schutt is a Nurse Practitioner practicing medicine in Iowa City, Iowa. Ms. Schutt is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1) and Neurofibromatosis.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Neurosurgery

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Patrick Hitchon is a Neurosurgery provider practicing medicine in Iowa City, Iowa. Dr. Hitchon is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Trigeminal Neuralgia, Fractured Spine, Spinal Stenosis, Microvascular Decompression, and Laminectomy.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology
    Experienced in Neurofibromatosis Type 1 (NF1)
    Hematology | Oncology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    David Dickens is a Hematologist and an Oncologist practicing medicine in Iowa City, Iowa. Dr. Dickens is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Acute Lymphoblastic Leukemia (ALL), Leukemia, Hepatoblastoma, Histiocytosis, and Bone Marrow Aspiration.

    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery
    Experienced in Neurofibromatosis Type 1 (NF1)
    Plastic Surgery

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    John Jensen is a Plastic Surgeon practicing medicine in Iowa City, Iowa. Dr. Jensen is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). His clinical expertise encompasses Neurofibromatosis and Neurofibromatosis Type 1 (NF1).

    Experienced in Neurofibromatosis Type 1 (NF1)
    Experienced in Neurofibromatosis Type 1 (NF1)

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Benjamin Miller is an Orthopedics provider practicing medicine in Iowa City, Iowa. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Rhabdomyosarcoma Embryonal, Epithelioid Sarcoma, Undifferentiated Pleomorphic Sarcoma, Mesenchymoma, and Hip Replacement.

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Varun Monga is an Oncologist practicing medicine in Iowa City, Iowa. Dr. Monga is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 39 other conditions, according to our data. His clinical expertise encompasses Oligodendroglioma, Astrocytoma, Embryonal Tumor with Multilayered Rosettes, and Glioblastoma.

    Nurse Practitioner
    Nurse Practitioner

    University Of Iowa Hospitals And Clinics

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Gretchen Kass is a Nurse Practitioner practicing medicine in Iowa City, Iowa. Ms. Kass is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). Her clinical expertise encompasses Neurofibromatosis Type 1 (NF1).

    Physician Assistant
    Physician Assistant

    State University Of Iowa

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Deborah Remy is a Physician Assistant practicing medicine in Iowa City, Iowa. Ms. Remy is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Pediatric Low-Grade Glioma (pLGG), RASopathies, Neurofibromatosis, and Neurofibromatosis Type 1 (NF1).

    Hematology | Oncology
    Hematology | Oncology

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Andrew Groves is a Hematologist and an Oncologist practicing medicine in Iowa City, Iowa. He has been practicing medicine for over 10 years. Dr. Groves is rated as an Experienced provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Rhabdoid Tumor, and Medulloblastoma.

    University Of Iowa Stead Family Children's Hospital

    200 Hawkins Dr, 
    Iowa City, IA 
     (0.7 miles away)
    Languages Spoken:
    English

    Stuart Weinstein is an Orthopedics provider practicing medicine in Iowa City, Iowa. Dr. Weinstein is rated as undefined provider by MediFind in the treatment of Neurofibromatosis Type 1 (NF1). He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Adolescent Idiopathic Scoliosis, Collins Pope Syndrome, Spinal Fusion, and Osteotomy.

    Showing 1-20 of 24

    Last Updated: 04/28/2026

    What is the definition of Neurofibromatosis Type 1 (NF1)?

    Neurofibromatosis-1 (NF1) is an inherited disorder in which nerve tissue tumors (neurofibromas) form in the:

    • Upper and lower layers of the skin
    • Nerves from the brain (cranial nerves) and spinal cord (spinal root nerves)

    When should I see a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Neurofibromatosis Type 1 (NF1) doctors near Iowa City, IA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Neurofibromatosis Type 1 (NF1) doctors near Iowa City, IA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. 

    Why is it important to get a second opinion from a different Neurofibromatosis Type 1 (NF1) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Neurofibromatosis Type 1 (NF1) doctor near Iowa City, IA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Neurofibromatosis Type 1 (NF1) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Neurofibromatosis Type 1 (NF1) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Neurofibromatosis Type 1 (NF1) doctors near Iowa City, IA?

    Look for the filter feature on the left side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Neurofibromatosis Type 1 (NF1) doctor that offers video calls?

    Look for the filter feature on the left-side of the Neurofibromatosis Type 1 (NF1) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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